Who We Are
When Bryce and Allison Lefebvre were pregnant with their second son, Miles, when they learned he would be born with the most disabling birth defect conducive to life called Spina Bifida. When Miles was born, his condition was much worse than expected and their life was turned upside down. After 5 months in the hospital and endless surgeries, they finally brought their son home attached to a trach, ventilator and ICU level equipment. Miles would have full codes almost daily where they would administer CPR and their entire life was revolved around his care.
As their young family adjusted to their new circumstance, they learned their third son would also be born with the same birth defect. Allison relocated from their home in Phoenix to Houston to undergo a risky and progressive inutero fetal surgery to hopefully improve Caleb’s outcome. Allison is the only Type 1 Diabetic in the world to endure this rare surgery and it was an incredibly difficult time. Baby Caleb also had rare complications from his Spina Bifida and endured 7 neurosurgeries in his first year of life.
The Lefebvres consider themselves to be the luckiest parents in the world. They have learned the most important lessons in life and choose joy every single day. They also relate to the devastating emotions of watching a child go through medical difficulties and navigating a complicated and painful world as medical parents.
They created Something So Worth It to be a ray of sunshine during a difficult time. Their journey has allowed them to experience the best in humanity and they intend to pay it forward to the world. SSWI will be the first responders from the moment of diagnosis by gifting their uplifting sunshine boxes. They will also follow up with exciting events and roundtable sessions where families can learn from their peers.
No one should have to feel alone when learning the hardest news of their life. If it is up to Bryce and Allison, a bright yellow box of gifts will be the first reminder that this fight is worth fighting for.